Ethical Problems and Genetics PracticeCambridge University Press, 5 เม.ย. 2012 - 171 หน้า Ethical Problems and Genetics Practice provides a rich, case-based account of the ethical issues arising in the genetics clinic and laboratory. By analysing a wide range of evocative and often arresting cases from practice, Michael Parker provides a compelling insight into the complex moral world of the contemporary genetics professional and the challenges they face in the care of patients and their families. This book is essential reading for anyone interested in the ethical issues arising in everyday genetics practice. Ethical Problems and Genetics Practice is also a sustained engagement with the relationships between bioethics and social science. In proposing and exemplifying a new approach to bioethics, it makes a significant contribution to debates on methods and interdisciplinarity and will therefore also appeal to all those concerned with theoretical and methodological approaches to bioethics and social science. |
เนื้อหา
1 Introduction | 1 |
2 The patient in the families | 14 |
3 Elective affinities | 37 |
4 Reproducing ethics | 60 |
5 Multiprofessional practices | 88 |
6 Moral craft | 112 |
7 Methodological reflections | 131 |
Glossary of medical terms | 153 |
| 159 | |
| 167 | |
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คำและวลีที่พบบ่อย
Anneke arise bioethics biological connection carrier child clinical geneticists clinical genetics clinician commitment to patient-centredness consent context create ethical problems culture day-to-day practice decisions diagnosis discussed Duchenne muscular dystrophy Dysmorphology emerge ethical issues ethnography etics professional example exploration family file family history family members family pedigree fetus gene Genethics Club genetic counselling genetic counsellors genetic information genetic testing genetics practice genetics profes genetics professional’s commitment genetics professionals genetics services genetics team health professionals implications important inherited disorders involved judgements Kinship Kleinman laboratory staff Lucassen master pedigree mation medicine moral commitments moral craft moral craftsmanship mutation negotiation non-directiveness particular patients and families possible potential preimplantation genetic diagnosis prenatal testing proband problematic profes question referral relationships relatives relevant risk role sample screening serious shared sister situations Syndrome termination of pregnancy test result testing and termination tion University Press unproblematic value-neutrality values woman